Jesy Nelson<\/a> was “very on edge about everything” when she took her twins home for the first time.<\/p>\n <\/p>\n
Jesy Nelson has reflected on her experiences<\/p>\n
The 34-year-old singer gave birth to twin daughters Ocean and Story in May 2025, but it took six months before they were diagnosed with spinal muscular atrophy type 1, a rare genetic condition which means they may never walk.<\/p>\n
Speaking to Sky News, Jesy shared: “When I took them home, I was very on edge about everything.<\/p>\n
“But the one thing I wasn’t taking notice of was the movement of the legs \u2026it took for my mum to spot that sign and that’s what’s really worrying because we had healthcare visitors come a lot and none of them spotted those signs.”<\/p>\n
Jesy was told that her twins were “absolutely fine” before she eventually received the diagnosis.<\/p>\n
\nThe pop star is grateful that her mum spotted a potential issue, as early diagnosis is key to treatment for spinal muscular atrophy.<\/p>\n
\nJesy – who first found fame as a member of Little Mix – said: “It wasn’t until they got their diagnosis that they were then like we’ve got to keep them in because they’re very underweight and they need to go on feeding tubes … and now they are still on feeding tubes.<\/p>\n
\n“That just goes to show how little awareness there is about it.<\/p>\n
\n“Thank God for my mum because I dread to think what position I’d be in now if my mum hadn’t had said anything to me…<\/p>\n
\n“It’s one of those things that I constantly go over and I have to sometimes stop myself from doing it because I will just like drive myself insane.”<\/p>\n
\nJesy has created a new docu-series about her pregnancy experience, and she recently admitted that the project turned out very differently to how she expected.<\/p>\n
\nIn a post on Instagram, Jesy wrote: “Isn\u2019t it crazy how the universe works, and how it\u2019s all divine timing? Last year, I decided that when I fell pregnant, I wanted to document everything. <\/p>\n
\n“I wanted to let cameras into my life and my home, and film what I thought was going to be a really exciting, fun little experience into motherhood that me and my girls could one day sit down and watch back for memories when they are older.<\/p>\n
\n“But little did I know the journey I was about to embark on.”<\/p>\n
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