Celine Dion<\/a> has donated $2 million to a hospital researching Stiff Person Syndrome (SPS).<\/p>\n<\/p>\n
Celine Dion has donated $2 million to a hospital researching Stiff Person Syndrome<\/p>\n
The 56-year-old singer was forced to stop performing following her 2022 diagnosis of the rare condition – a progressive neurological disorder that affects her muscles – and she has now pledged a huge sum in a bid to find a cure. <\/p>\n
Celine made the donation to University of Colorado Anschutz Medical Campus, where she is being treated by Dr. Amanda Piquet. <\/p>\n
Amanda, a director of Autoimmune Neurology at CU Anschutz, told CBS News: “I am just incredibly honoured to receive this recognition to move the field forward with this research.<\/p>\n
“Stiff Person Syndrome is a progressive autoimmune neurological disorder that is characterized by two cardinal features \u2013 muscle spasms and stiffness.<\/p>\n
\n“She [Celine] happened to find us, and it was a great relationship, and we worked really hard with her managing those symptoms, getting her on a good treatment pathway.<\/p>\n
\n“There are no FDA-approved therapies for this disease. We often use immune therapies, and symptomatic therapies to manage the disease. <\/p>\n
\n“We will also do things like physical therapy, massage therapy, and in Celine’s case vocal therapy to help manage the symptoms.”<\/p>\n
\nCeline has shone a light on the disease in recent documentary ‘I Am: Celine Dion’, which included footage of her suffering a torturous 10-minute seizure caused by SPS. <\/p>\n
\nIt showed the singer\u2019s doctor conducting an evaluation as she had been experiencing spasms due to SPS, with sports medicine therapist Terrill Lobo saying: “Part of the disease is that as soon as you go into a contraction, sometimes … the signal to release it, doesn\u2019t understand, so it ends up just staying in a contracted position.”<\/p>\n
\nAfter he managed to get Celine to lie down on a massage table, the singer kept spasming, which Terrill warned could spark “a crisis”.<\/p>\n
\nThe Grammy-winning star was then seen going into a full-blown seizure, as the doctor called in another member of his medical team to bring in Valium.<\/p>\n
\nThe ‘My Heart Will Go On’ hitmaker previously admitted she wants to “raise awareness” of SPS through the documentary.<\/p>\n
\nShe said: “This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me. <\/p>\n
\n“As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans. <\/p>\n
\n“During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.”<\/p>\n<\/div>\n
\n
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